Posts Tagged ‘ fragile-x ’

NFXF Webcasts

The National Fragile X Foundation has been producing audio webcasts covering various aspects of Fragile X. They are available to listen to from their website on the Prior Audio Webcasts page
Topics to date::

“Thriving Not Just Surviving: Family Self-Care” with Diane Simon Smith, M.P.H., MA, M.F.T. ,  Carolyn Krull Toennessen, Aerospace Industry Project Manager [...]



Today is Fragile X Awareness Day

Reasons that Raising Awareness of Fragile X Syndrome is Important?

It is estimated that one child is born in Australia every week with Fragile X Syndrome and in that same week, 12 babies will be born who are carriers. One in 3800 males and 1 in 4000 females are affected by the condition.
Although Fragile [...]



Fragile X Adults at Work

A new page has been added to our site, Helping and Understanding Adults at Work. A downloadable version is also available at How You Can Work Well with Jane or John .
Although focussed specifically on adults in the workforce, the information is useful for everyone; to help us understand and deal with male and female adults with Fragile [...]



Screening for Fragile X Syndrome

The Australian newspaper recently published an article, Screening for fragile X sidelined, which discusses the issue of testing for Fragile X by screening newborns or testing of women before they become pregnant.
Fragile X is unusual in that not only are males and females affected by it, a significant number of carriers also suffer their own [...]



New method of scoring IQ tests for children with Fragile X Syndrome

Children with Fragile X vary greatly in their abilities and degree of difficulties. Normal IQ testing is often inaccurate because these tests are based on the performance of children without disabilities.
David Hessl, from the UC Davis M.I.N.D. Institute, and a team of researchers have devised a new method of testing. David, who works with children [...]



An Introduction to Fragile X Syndrome

If you are reading this never having heard of Fragile X Syndrome or having heard the name and knowing nothing more about it, here is a brief introduction.
Fragile X syndrome is the most common form of inherited intellectual disabilty worldwide. In addition to intellectual issues there are many more possible symptoms, with males being more [...]



Fragile X Videos on YouTube

I have just added a page to the site called “Video Clips” which can be found under the Resources Menu. The page includes links to YouTube videos on Fragile X Syndrome and we will update this as new ones are uploaded. If you know of any Fragile X videos or slide shows on sites [...]