An Australian Study of families who carry the fragile X gene The Australian Research Council (ARC) has funded a 3 year study to help families, health professionals and educators understand how being a carrier of fragile X impacts on Australian families. For many years, individuals who carried the fragile X gene (carriers) were assumed to [...]

Professor Kim Cornish, a FXAA board member, has had an article about Fragile X,  “ADHD, autism or something else entirely?“,  published by the online news site The Conversation. Kim, a Developmental Neuroscientist, is Head of Discipline – Psychology, Deputy Head of the School of Psychology and Psychiatry and is the Director of the Developmental Neuroscience [...]

The National Fragile X Foundation has been producing audio webcasts covering various aspects of Fragile X. They are available to listen to from their website on the Prior Audio Webcasts page Topics to date:: “Thriving Not Just Surviving: Family Self-Care” with Diane Simon Smith, M.P.H., MA, M.F.T. ,  Carolyn Krull Toennessen, Aerospace Industry Project Manager [...]

Reasons that Raising Awareness of Fragile X Syndrome is Important? It is estimated that one child is born in Australia every week with Fragile X Syndrome and in that same week, 12 babies will be born who are carriers. One in 3800 males and 1 in 4000 females are affected by the condition. Although Fragile [...]

A new page has been added to our site, Helping and Understanding Adults at Work. A downloadable version is also available at How You Can Work Well with Jane or John . Although focussed specifically on adults in the workforce, the information is useful for everyone; to help us understand and deal with male and female adults with [...]

The Australian newspaper recently published an article, Screening for fragile X sidelined, which discusses the issue of testing for Fragile X by screening newborns or testing of women before they become pregnant. Fragile X is unusual in that not only are males and females affected by it, a significant number of carriers also suffer their [...]

Children with Fragile X vary greatly in their abilities and degree of difficulties. Normal IQ testing is often inaccurate because these tests are based on the performance of children without disabilities. David Hessl, from the UC Davis M.I.N.D. Institute, and a team of researchers have devised a new method of testing. David, who works with [...]

If you are reading this never having heard of Fragile X Syndrome or having heard the name and knowing nothing more about it, here is a brief introduction. Fragile X syndrome is the most common form of inherited intellectual disabilty worldwide. In addition to intellectual issues there are many more possible symptoms, with males being [...]