Posts Tagged ‘ Events ’
Hobart Fragile X workshop
January 27th, 2010Free One Day Workshop
Hobart
Friday 12th March 2010
Fragile X Syndrome
The Fragile X Association, through the sponsorship of the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile X syndrome. This free workshop is open to health professionals, [...]
Wynnum Carols by the Bay
December 17th, 2009Wynnum Carols by the Bay are being held on December 19th from 3pm till 9pm at Wynnum Esplanade (George Clayton Park Wynnum), Brisbane, Qld.
Thanks to the Wynnum Spring Festival Association, proceeds from the raffles on the night will be donated to The Fragile X Association of Australia. Some of our members will be selling tickets [...]
Wynnum Spring Festival Supports Fragile X
September 29th, 2009We are pleased to report that the Fragile X Association of Australia has been chosen to be the main beneficiary of the proceeds from the Wynnum Spring Festival. The festival held in Wynnum, in the Manly bayside area of Brisbane, started out 87 years ago as a Spring Parade and now includes a week long [...]
Today is Fragile X Awareness Day
July 22nd, 2009Reasons that Raising Awareness of Fragile X Syndrome is Important?
It is estimated that one child is born in Australia every week with Fragile X Syndrome and in that same week, 12 babies will be born who are carriers. One in 3800 males and 1 in 4000 females are affected by the condition.
Although Fragile [...]
Fragile X Awareness Day Update
November 4th, 2008In our latest newsletter is a page on Fragile X Awareness Day, held on July 22nd every year. Many of our members supported the Day with fundraising and other events but the efforts of two members should be noted. Margaret Tappert, a Taree grandmother of Fragile X Syndrome children, contacted her local media and managed [...]
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