Thank you to all our members who took part in Awareness Month activities.  Thank you also to VivaCommunications who were tireless in promoting our cause to the various media outlets which resulted in extensive media coverage in July. We are pleased that Australian TV, radio and newspapers helped promote Fragile X Awareness and the upcoming [...]

US Congressman Phil Hare (D-IL), Congressman Gregg Harper (R-MS), and Holly Roos of Canton, IL created the following Public Service Announcement to recognize Fragile X Awareness Day. You can view this and many other Fragile X Videos on the YouTube Fragile X Group

Reasons that Raising Awareness of Fragile X Syndrome is Important? It is estimated that one child is born in Australia every week with Fragile X Syndrome and in that same week, 12 babies will be born who are carriers. One in 3800 males and 1 in 4000 females are affected by the condition. Although Fragile [...]

This week’s edition of That’s Life magazine features an interview with Mel Mikkleson, who coordinates the Queensland Fragile X support group and whose son, Tom, is affected by Fragile X. She talks about his early development, her feelings on receiving the Fragile X diagnosis and its symptoms. You can read a summary of the article [...]