Posts Tagged ‘ awareness ’
US PSA on Fragile X Awareness Day
July 23rd, 2009US Congressman Phil Hare (D-IL), Congressman Gregg Harper (R-MS), and Holly Roos of Canton, IL created the following Public Service Announcement to recognize Fragile X Awareness Day.
You can view this and many other Fragile X Videos on the YouTube Fragile X Group
Today is Fragile X Awareness Day
July 22nd, 2009Reasons that Raising Awareness of Fragile X Syndrome is Important?
It is estimated that one child is born in Australia every week with Fragile X Syndrome and in that same week, 12 babies will be born who are carriers. One in 3800 males and 1 in 4000 females are affected by the condition.
Although Fragile [...]
Fragile X Article in That’s Life Magazine
March 4th, 2009This week’s edition of That’s Life magazine features an interview with Mel Mikkleson, who coordinates the Queensland Fragile X support group and whose son, Tom, is affected by Fragile X. She talks about his early development, her feelings on receiving the Fragile X diagnosis and its symptoms.
You can read a summary of the article on [...]
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