Please call our office:

1300 FX INFO (1300 394 636)

The main aim of our telephone-based support line is to provide a network of volunteers with life experience in dealing with issues regarding Fragile X Syndrome. Our volunteers include committee members and other people involved with the Fragile X Association of Australia, all of who have had varying degrees of experience with Fragile X Syndrome. Our hope is to reassure people dealing with Fragile X affected people that there are other people who understand and appreciate their situation.

Social Events

Our social get togethers over the last couple of years have included:

• Young Adults’ Group – Fishing Day, Trip to Ocean World, Golf Day, Movies, bowling
• Family Picnic Days

Fundraising events

• Fragile X Christmas Card Sales
• Shopping Tour
• Fundraising social evenings

Library

The Fragile X lending library is based in Sydney but orders can be made by post using the book request form on our Library Page

Information

• Conferences
• Information sessions.
• Booklets
• Newsletter
• Articles and news via this website.

Testimonial from a recent caller to the Parent Support Line:

Through contacting the Parent Support Line and a little sole searching on my part, I have come to the realization that, the diagnosis doesn’t define Tom, it’s just a little part of who he is. He has an amazing yet cheeky personality, gives and has lots of love from his family and friends, has a beautiful voice, a fantastic memory, has mastered riding his bike and scooter, and is very caring. For Tom, Fragile X is why he sometimes gets a little frustrated or over stimulated.

I would definitely encourage any parent with a newly diagnosed Fragile X child, to phone the parent support line. It is wonderful to know that the person at the other end knows exactly what you are going through.

Mel