Video Clips
As from 1st December 2010 YouTube Groups are no more so the Fragile X Group is no longer available to view. Instead you can view the Fragile X videos that I have added to my own Fragile X playlist and be informed of updates by subscribing to my channel Sueblimely
Featured Videos
TBF – Making The Most Of Life
Rosie talks about her life and the challenges of having Fragile X. Rosie normally produces videos giving beauty tips, with an emphasis on using natural, organic and mineral make-up. You can find the videos on her popular YouTube channel “The Beauty Files“.
Rachael 2006
Rachael, now 7, is a symptomatic fragile X premutation carrier with autistic characteristics and low IQ. Her developmental age is about 4. It is her mum singing on the video
Newly Added
x fragile Although the subtitles and song are in French the delightful star of this video, Thomas, shows us some of the typical signs of Fragile X.
First Down Towards a Cure for Fragile X Families and professionals talk about their experiences of working with and caring for children with Fragile X syndrome and their hopes that research will find a cure within their lifetime.
Rachael 2006 Rachael now 7 is a symptomatic fragile X premutation carrier with autistic characteristics and low IQ. Her developmental age is about 4. It is her mum singing on the video.
Educational Videos
This “heartwarming film follows families living with Fragile X Syndrome”. With Katy Clapp MS- Parent, President and Co-Founder of FRAXA
Language Problems in Fragile X Syndrome
Leonard Abbedu talks about factors affecting language learning in fragile X syndrome. Series: “M.I.N.D. Institute Lecture Series on Neurodevelopmental Disorders” [8/2007]
Public Service Announcement about Fragile X presented by Jim Cantore, meteorologist and presenter for The Weather Channel (USA).
The National Fragile X Foundation-A Parent’s Perspective
Meet Families touched by Fragile X
Pharmacological Interventions: Fragile X
2005 UC Davis M.I.N.D. Institute Summer Series on Neurodevelopmental Disorders presented by Randi J. Hagerman, M.D., F.A.A.P…
Neurodevelopmental Disorders: Fragile X and Autism
2003 UC Davis M.I.N.D. Institute Summer Series on Neurodevelopmental Disorders presented by Randi J. Hagerman, M.D., F.A.A.P.
Created by Justin S., Julie and Brianna, students at the University of Missouri – Columbia for Genetic Diseases, Bio 2002, WS07
Personal Videos
Videos created by parents and family of children with Fragile X
A montage of our family and our journey with Fragile X Syndrome by YouTube member mumofthree
Geoffrey and Peter are 20 years old and both of them have Fragile X. Both are very different boys, although they carry the same disability. This is a music video of some of the things they have done together with their family and shows them enjoying those times.
Fragile X Pedition Nuts TV interview
Simon Siggs is interviewed on Nuts TV regarding his “Fragile X Pedition”. Simon motorcycles from the top to the bottom of the world raising money and awareness for Fragile X Syndrome for the Fragile X Society (UK)
This documentary explores the joys and hardships a single mother faces as she raises her 3 adult sons all diagnosed with the rare disorder “fragile x” syndrome
Video montage of a 2 year old boy who has Fragile X Syndrome
Laura (7 years old) explains what it’s like to have a brother with Fragile X; a mom describes how her sons get along.
Video of Blake getting excited while watching 101 Dalmatians.
About Kyle
Story of a family and Fragile X a video created for a university project – to document and bring awareness to Fragile X.
Living With Fragile X Documentary
A series of short videos showing snippets of ” Living With Fragile X” – a one hour documentary scheduled for release October 2008. Video clips from the documentary are also viewable from the YouTube Fragile X Group
