Books, DVDs, CDs and handbooks on a range of Fragile X topics are available for purchase either via this site, the National Fragile X Foundation in USA and from Amazon. You can find a list of these and details on where to purchase them on our Books and Videos for Purchase page.

Updates:

“Fragile X Syndrome” is a stand-alone interactive CD-ROM integrating the genetics and clinical features of fragile X syndrome. It is produced by Associate Professor Sylvia Metcalf from the University of Melbourne and Dr Jonathan Cohen from the Fragile X Alliance. Version 2 (2009) is now available for purchase from the Fragile X Alliance Please see the order form.

A Medication Guide for Fragile X Syndrome,  by Michael R Tranfaglia MD, is available for download (pdf) from Dr Tranfaglia’s web site,  Dr Mike’s Psychiatry Blog,  for US$14.95. You can still purchase the  hard copy version via our site.

Free One Day Workshop

Hobart

Friday 12th March 2010

Fragile X Syndrome

The Fragile X Association, through the sponsorship of the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free workshop is open to health professionals, educators and families and carers of people affected with Fragile X syndrome.

All speakers are recognised experts in their field and will cover a wide range of management strategies relevant to developmental disabilities and autism spectrum disorders.

If you are interested please download the Hobart workshop flyer for more information and to register.

Wynnum Carols by the Bay are being held on  December 19th from 3pm till 9pm at Wynnum Esplanade (George Clayton Park Wynnum), Brisbane, Qld.

Thanks to the Wynnum Spring Festival Association, proceeds from the raffles on the night will be donated to The Fragile X Association of Australia. Some of our members will be selling tickets on the night so please come down and say g’day.

The event kicks off at 3.00pm with a mini carnival, food, drinks and entertainment. The Community Carol singing will begin at 7.00pm and the evening ends with fireworks starting at 8.30pm.

The Fragile X Association of Australia would like to thank  Pages and Pages of Mosman, Sydney, and The Constant Reader of Crows Nest, Sydneyfor their support in selling our Christmas cards once again this year. Pages and Pages have been selling our Christmas cards for many years and this is the third year that the Constant Reader have stocked our cards.

The Association would also like to thank all our other supporters who have purchased cards this year.  We now only have limited quantities left.

Many thanks to all who bought our Christmas Cards this year. We have now run out of stock. We will be selling them again next year.

On 14 September 2009, the Parliamentary Secretary for Disabilities and Children’s Services, the Hon Bill Shorten MP, and the Minister for Employment Participation, Senator the Hon Mark Arbib, jointly released the National Mental Health and Disability Employment Strategy, a part of the government’s Social Inclusion Agenda. The Social Inclusion Agenda aims to address the barriers faced by people with disability, including mental illness, that make it harder for them to gain and keep work.

The Strategy sets out a number of priority actions to assist Australians with disability, including mental illness, into work. It recognises the importance of education and training as a pathway to sustainable employment, and the role of employers in increasing employment opportunities for people with disability.

A copy of the Strategy paper is available for download from the Australian Workplace website.

As well as keeping up with National Fragile X Foundation announcements and news on their website you can now follow their news via the new NFXF Twitter page FragileXnews If you would rather read the Twitter updates via a newsreader you can do so via the FragileX news feed. Website news feeds can also be sent to you by email using the online service feedmyinbox

Preliminary results from the US National Fragile X Survey are now available to view on the Fragile X Survey Site. If you want to keep up with further study announcements you can do so on the NFXF National Fragile X Survey page

A new Fragile X Handbook has been published. You can purchase the book from the Fragile X Alliance Inc, (03) 9528 1910,  in Australia or directly from the NFXF on their shopping page, where you can also view the table of contents.