Fragile X

Association

of Australia

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  Incorporating the NSW Parents Support Group

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Join us

Membership of the Association is open to anyone but, in particular, to any individual, family or institution who has an interest in supporting/caring for people with Fragile X Syndrome. Our membership consists mainly of families of people with Fragile X, but also includes doctors, therapists, educators, other professionals and schools.

Membership is AUD $25 per year for an individual/family/institution.

If you would like to become a member of the association, please click the button below to download and fill out the application form and mail it to us with your payment.

Membership Form

Benefits of membership

Newsletter

Members receive quarterly newsletters which include:

  • news on developments in the understanding and treatment of Fragile X

  • member comments/experience

  • details of upcoming events.

Support

Members can talk to other families to learn about their experiences with Fragile X and thus gain knowledge in how to deal with issues on a day to day basis.

Information

The Association has produced  a booklet and brochures on Fragile X and has a library of publications, DVDs etc which are available to members. 

Clinics

Specialised medical/therapeutic clinics for children and adults with Fragile X are arranged by the Association and are available to members at no cost. 

Events

The Association arranges:  

  • Conferences and seminars where local and overseas experts share their knowledge and insights

  • Social events to provide members with an opportunity to meet and share their experiences with other Fragile X families

  • Young adults social and sporting activities

Christmas cards

Members can purchase Fragile X Association Christmas cards to send to their friends, to help “spread the word” about Fragile X and to help raise money for the Association. 

Donations

Members have the opportunity of making tax deductible donations (in Australia) to support the work of the Association

 
 
 
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