Australian Fragile X Sites

• Fragile X Association of Australia – this site
• Fragile X Association of Australia Support Forum
• Fragile X Alliance Inc – incorporating the Fragile X Alliance Clinic based in Melbourne and Fragile X book ordering resource – details.
• FXAA Facebook Page Announcements from our Association
• FXAA Facebook Support Group

Other Fragile X Sites

Online/Email Support

• Our Forums
• Fragile X Listserv Bulletin Board for Parents
• Fragile X Yahoo Group
• National Fragile X Foundation Social Networking Site “My Fragile X Community”

Fragile X Organizations

• The National Fragile X Foundation (NFXF) – USA -a comprehensive resource for information on Fragile X
• FXTAS NFXF site dedicated to Fragile X-associated Tremor/Ataxia Syndrome (FXTAS)
• The Fragile X Society UK
• Fragile X Trust (N.Z.) New Zealand

Research

• Fragile X Research Foundation – for news on the latest research funded by the Foundation
• The Mind Institute Fragile X Research and Treatment Center
• Pub Med – Fragile X Search
• Fragile X Syndrome Research Today- a free monthly online journal that collates and summarizes the latest research about Fragile X Syndrome, including details on symptoms, treatment, heritability, diagnosis.
• UK Research Reports – The results of fragile X studies as reported in the Fragile X Society’s Newsletter and Research Supplement, and at Family Conferences.

Useful Fragile X Resources

• Announcements from the National Fragile X Foundation - news from the foundation and Fragile X in the media ….
• Frequently Asked Questions – Useful information from the Children’s Hospital Boston site
• Information Booklet- Booklet on Fragile X Syndrome by the Murdoch Children\’s Hospital Research Institute. PDF file
• Multimedia guide with downloadable video – explains Fragile X, diagnosis, symptoms and treatment in simple terms – from Your Genes Your Health
• National Fragile X Foundation Quarterly Journal – emailed free