Australian Fragile X Sites

• Fragile X Association of Australia – this site
• Fragile X Alliance Inc – incorporating the Fragile X Alliance Clinic based in Melbourne and Fragile X book ordering resource – details.

Other Fragile X Sites

Online/Email Support

• Our Forums
• Fragile X Syndrome on Ning – a social site where each member can have their own page, upload photos, message others, add articles etc. Run by Sue (aka Sueblimely) and Janine who run our forums on this site.
• Facebook Fragile X Groups
• Fragile X Chat – FraxSoCal – Weekly Chats
• Fragile X Listserv Bulletin Board for Parents
• Fragile X Yahoo Group
• National Fragile X Foundation Message Boards
• National Fragile X Foundation Social Networking Site “My Fragile X Community”
• New Zealand Fragile X Trust Forum

Fragile X Organizations

• The National Fragile X Foundation – USA -a comprehensive resource for information on Fragile X
• Fragile X Association of Southern California – quarterly newsletter
• The Fragile X Society UK
• Fragile X Trust (N.Z.) New Zealand

Research

• Fragile X Research Foundation – for news on the latest research funded by the Foundation
• The Mind Institute Fragile X Research and Treatment Center
• Pub Med – Fragile X Search
• Fragile X Syndrome Research Today- a free monthly online journal that collates and summarizes the latest research about Fragile X Syndrome, including details on symptoms, treatment, heritability, diagnosis.
• UK Research Reports – The results of fragile X studies as reported in the Fragile X Society’s Newsletter and Research Supplement, and at Family Conferences.

Useful Fragile X Resources

• Announcements from the National Fragile X Foundation - news from the foundation and Fragile X in the media ….
• Frequently Asked Questions – Useful information from the Children’s Hospital Boston site
• Information Booklet- Booklet on Fragile X Syndrome by the Murdoch Children\’s Hospital Research Institute. PDF file
• Multimedia guide with downloadable video – explains Fragile X, diagnosis, symptoms and treatment in simple terms – from Your Genes Your Health
• National Fragile X Foundation Quarterly Journal – emailed free