I posted some information about fx being the leading known genetic cause of Autism with information about the current medication research, on the channel seven sunrise facebook page and it has been deleted!
I encourage you to post fragile x information on the sunrise facebook website and get a discussion happening. If we can get some information about fragile x on a show like sunrise, it would certainly help raise the profile of Fragile X Syndrome and help spread awareness of this condition.
Glad you like it - There were a few others that I wanted to include but I could not extract good enough head shots from the photos I had. Janine this includes ones of P and some of yours Maggie. If anyone would like me to add their child to this front page profile shot gallery please send me photos you think would work for it. They do not have to be current ones - could be when your child was younger.
I will get working on a photo gallery using full photos rather than these head shots - hopefully get it done before I go away so please send me any photos you would think would be good to include - you can find my email address in my profile. It would be good to give some indications of the various traits of our kids - for example I have one of A that is a great example of how flexible he is.
Hi Mel, Can you send me the beginning of this conversation with Rachel from the autistic centre in Cambridge. I think this is absolutely amazing how they seem to totally disregard fragilex as a cause of autism and are unwilling to test for it. christine
I have given a few out to disability workers and to people at church who are interested in learning about it. Most people are wanting to learn about it, so they can talk with the boys and share in conversation with them. It's a great ice breaker...
Please email Jocelyn and ask for some fx brochures. Take the brochures to your local doctor's surgery's. The public are interested in 'new' information. I have no doubt that people will pick up our brochures and read them.
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