Recent Posts

• Check this out...this is ... by christine [March 02, 2010, 09:17:19 PM]
• How to spread awareness o... by Janine [February 21, 2010, 02:29:26 PM]

Hi Mel, Can you send me the beginning of this conversation with Rachel from the autistic centre in Cambridge.   I think this is absolutely amazing how they seem to totally disregard fragilex as a cause of autism and are unwilling to test for it. christine

I have given a few out to disability workers and to people at church who are interested in learning about it. Most people are wanting to learn about it, so they can talk with the boys and share in conversation with them. It's a great ice breaker...

Janine. x

Please email Jocelyn and ask for some fx brochures.  Take the brochures to your local doctor's surgery's.  The public are interested in 'new' information.  I have no doubt that people will pick up our brochures and read them. 

Thanks!

Mel.

I wrote to Cambridge again re: their Autistic research and testing for fx.

The email I wrote is at the bottom.  The response is at the top.

Mel.

Rachel Jackson to Mikkelsen
show details 1:29 AM (14 hours ago)
Dear Mel Mikkelsen,
 
Thank you for your offer to help. I am afraid we don’t research this topic in relation to autism, and do not yet plan to – as our research programmes are full. We don’t normally test for Fragile X ourselves as we do not have the laboratory facilities or technical expertise to carry out such tests.
 
But, thank you for your willingness to help our research.
 
With Best Wishes,
Rachel
 
Rachel Jackson,
Research Administrator,
Autism Research Centre,
Douglas House,
18b Trumpington Road,
Cambridge,
CB2 8AH.
Tel: 01223 746063
Fax: 01223 746033
Email: raj33@medschl.cam.ac.uk
From: Mikkelsen Family [mailto:mikkelsenfamily@optusnet.com.au]
Sent: 06 February 2010 00:29
To: Rachel Jackson
Subject: Autistic Studies
 
Hi,
 
Just wondering if or when your research group will be looking into studies into fragile x syndrome (given that it is the most common genetic cause of autism).  Also wondering if all research participants have been tested for this gene as part of a standard research protocol.
 
Thanks,
 
Mel Mikkelsen
QLD Co-ordinator for the Fragile X association of Australia
www.fragilex.org.au
qld@fragilex.org.au

Hi Sue and Mel,

I just find it hard to cop that vaccines cause autism when we have clear evidence that the genetic anomaly we carry has direct links to autism. I know that not every Fragile X child has autism but a great number do. When these people get on their soap boxes they give no thought to people who have a genetic reason for the way their children are. Their arguments are one sided, and emotive and I think (now I am sticking my neck out here) often from parents who do not have any underpinning genetic cause for their child's autism. It seems that they are looking for something external that they can blame.  Anyone who does not have a child should not be arguing. Also when these vaccines are given is the time frame when delays are starting to be noted. Often the loudest voices are from people who have no experience at all.

Greg has just come in and said that he has the link to what you are talking about Sue and he says she has been discredited anyway.

There is so much evidence against vaccination being the cause of autism.  I can't find the link now but there is a new study that has detected signs of autism in the first weeks of life. I did find this one from last year though http://www.abc.net.au/worldtoday/content/2009/s2685193.htm

http://www.stopjenny.com/WhyJennyIsWrong.html