Victoria
FRAGILE X UPDATE NOVEMBER SEMINARS
September 24th, 2009In November the Fragile X Association of Australia are hosting Fragile X Update seminars in Melbourne, Sydney and Brisbane. Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental Disorders) Institute in UC Davis in America will present the latest information on developments in treatment of Fragile X syndrome as well as what is happening in research into Fragile X syndrome. Topics covered will include behavioural and interventional issues for the person with Fragile X; health issues for the carrier; educational, new treatments and advances in research. Professor Hagerman will also cover all types of clinical involvement in premutation and full mutation individuals and all types of treatment with emphasis on targeted treatments.
Download the seminar registration form for more information.
.
Family Fun Day at Braeside Park in Melbourne
March 23rd, 2009Fragile X Association of Victoria
invites all families from the Fragile X Community
to the
Annual Family Fun Day
Sunday 26th April 2009 from 12 midday
Braeside Park
The main entry is on Lower Dandenong Road, Braeside (Melway ref: 88 D8)
Free lollies and a hot dog for the kids
Bring any other food for a picnic/barbecue, drink, picnic rugs etc.
Meet up with other families in a casual, relaxed environment
Braeside Park Offers
Ample BBQ’s and picnic areas
Adventure Playground
Walking Trails and Bike Tracks
Beautiful, natural surrounds with abundant birdlife
If the weather is not favourable, please call to check that the Family Fun Day will go ahead.
We will meet at the Telford picnic area near the visitor centre, look for the large Fragile X Association banner with a black background and our yellow and orange logo.
Coffee Morning Victoria Support Group
November 24th, 2008The Fragile X Victoria support group is holding a coffee morning in Frankston on Thursday 11th December 2008 at 10.30 am.
This is a good chance to meet or to catch up with other parents living with Fragile X in the family over a cuppa and in a relaxed setting.
Changes to Victoria’s Equal Opportunity Act
October 4th, 2008From 1 September, changes to Victoria’s Equal Opportunity Act (1995) came into place which give protection from discrimination to working parents and carers.
Under the amendments, it is unlawful for an employer to unreasonably refuse to accommodate a person’s responsibilities as a parent or carer. The changes apply in relation to job applicants and existing employees, as well as to to contract workers and partnerships.
The Act provides some examples of how these new rules can be implemented which include
- working part-time
- job sharing
- working from home for all or part of the working week.
- starting and finishing earlier or later
Practical guidelines to inform employers and employees about these changes and what they might mean are contained in the document Building eQuality in the workplace:Family Responsibilities – Guidelines for Employers and Employees which is available for download on the Victorian Government Human Rights Commission’s website. Carers Victoria helped to develop these guidelines and members of Carers Victoria will be sent a copy of this with their next newsletter.
Subscribe