Fragile X Association of Australia » Stories http://www.fragilex.org.au Information and news on Fragile X Syndrome and disability Australia Wed, 25 Jan 2012 01:48:18 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 fx-info Newsletter Summer 2011 http://www.fragilex.org.au/2012/fx-info-newsletter-summer-2011/ http://www.fragilex.org.au/2012/fx-info-newsletter-summer-2011/#comments Mon, 09 Jan 2012 17:44:15 +0000 Sue Bride http://www.fragilex.org.au/?p=2398 Read the Full Newsletter: fx info Newsletter Summer 2011 ]]> http://www.fragilex.org.au/2012/fx-info-newsletter-summer-2011/feed/ 0 fx info Newsletter Summer 2010 http://www.fragilex.org.au/2010/fx-info-newsletter-summer-2010/ http://www.fragilex.org.au/2010/fx-info-newsletter-summer-2010/#comments Thu, 09 Dec 2010 18:07:31 +0000 Sue Bride http://www.fragilex.org.au/?p=1895
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Highlights

  • Will Delaat, chair of Medicines Australia and FXAA board member,addresses the National Press Club
  • “Letter from the President”, John Kelleher
  • Letter from the new Parliamentary Secretary for Disabilities and Carers to FXAA explaining the new services available to people
    with fragile X syndrome.
  • FX Raffle details
  • Workshops and Clinics Update
  • Grant from Newman’s Own Foundation (with upcoming presentation on TV’s “A Current Affair”) and the
  • Grant from Brenda Best Charitable Trust
  • Success in Application for PhD Scholarship, 2011-2013
  • FXTAS: A New Study May Shed Light on the Syndrome in Older Men
  • Fragile X and Neurogenetics Research in Melbourne, Australia.
  • What Have I Changed My Mind About? – Article by Marcia Braden, psychologist and special education consultant in Colorado Springs
  • Member’s Story:Don and Dorothy Roberts. Response from Professor Gillian Turner
  • Tim Dances at Disneyland
  • State Support News
]]> http://www.fragilex.org.au/2010/fx-info-newsletter-summer-2010/feed/ 0 fx info Newsletter Autumn 2010 http://www.fragilex.org.au/2010/fx-info-newletter-autumn-2010/ http://www.fragilex.org.au/2010/fx-info-newletter-autumn-2010/#comments Wed, 07 Apr 2010 05:50:54 +0000 Sue Bride http://www.fragilex.org.au/?p=1530


Highlights

  • The Honourable Bill Shorten, the Parliamentary Secretary for Disabilities & Children’s Services meets with FXAA committee members.
  • The National Library’s PANDORA Archive include our FX INFO newsletter in their archives.
  • FX Carrier Support article.
  • Hobart Seminar report.
  • Australian and New Zealand Fragile X Family Survey
  • Article by Marcia Braden, PHD – ‘Reality Check’. Marcia discusses popular parenting advice in relation to children with Fragile X.
  • Funding Update
  • Strategy Day report
  • News from the States

Read the full newsletter:fx info Newsletter Autumn 2010

]]> http://www.fragilex.org.au/2010/fx-info-newletter-autumn-2010/feed/ 0 fx info Newletter Spring 09 http://www.fragilex.org.au/2009/fx-info-newletter-spring-09/ http://www.fragilex.org.au/2009/fx-info-newletter-spring-09/#comments Fri, 02 Oct 2009 02:47:57 +0000 Sue Bride http://www.fragilex.org.au/?p=1360 Fragile X Association Newsletter

Highlights

  • From November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and family
    forums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental
    Disorders) Institute in UC Davis in America. Seminar Registration Form
  • Fragile X Christmas Cards 2009 on sale
  • Profile – Professor Kim Cornish – Fragile X researcher and Professor of Psychology at Monash University in Melbourne.
  • National Fragile X Survey Extended – If you haven’t had time to complete the survey on line we have now extended
    the survey until the end of October.
  • Article – Fragile X syndrome and reproductive genetics in the 21st century by Dr Ken Maclean Clinical Geneticist
  • Article – Kids are still Kids by Azma Hoskins
  • Committee member Doug Rogers is  Mosman Daily’s Father of the Year and one of 20 finalists for the NSW Community Father of the Year.
  • Review of Fragile X Awareness Day
  • News from the state support groups.

Read online or download and save: fx info Spring 2009

]]> http://www.fragilex.org.au/2009/fx-info-newletter-spring-09/feed/ 0 Newsletter Spring 2008 http://www.fragilex.org.au/2008/newsletter-spring-2008/ http://www.fragilex.org.au/2008/newsletter-spring-2008/#comments Wed, 17 Sep 2008 21:35:32 +0000 Sue Bride http://www.fragilex.org.au/?p=302

Read online or download and save: fx info Spring 2008

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