Stories
fx-info Newsletter Summer 2011
January 9th, 2012Read the Full Newsletter: fx info Newsletter Summer 2011
Highlights
- Farewell to Jane Davidson, our Social Worker
- Welcome to our new Counsellor, Janie Roberts, who is providing free counselling to families, couples, siblings and individuals by telephone and by face to face sessions at our office in Manly.
- Updates on our clinics, workshops and the Better Start Initiative
- Clinical Trial in Adolescents with Fragile X
- About our soon to be released Fragile X DVD
- Mike Baird’s, Member for Manly and NSW Treasurer, annual community fundraiser. Fragile X Australia was one of the two beneficiaries of the night.
- Updates from Linda Blair our Office Manager
- Member’s Story – Hugh at 22—life in the bus lane
- Fragile X Research Symposium Brisbane
- Article summary: “What we know or need to know about Fragile X premutation – a brief account”, by Dr Danuta Z Loesch, Senior Research Fellow, School of Psychological Science, La Trobe University. The full article is available on our documents for download page
- Launch of the new book by Robyn Iredale, “Growing Up with Fragile X Syndrome—the Road to Marty Campbell”
- State Support News
fx info Newsletter Summer 2010
December 9th, 2010
Read the Full Newsletter:
Highlights
- Will Delaat, chair of Medicines Australia and FXAA board member,addresses the National Press Club
- “Letter from the President”, John Kelleher
- Letter from the new Parliamentary Secretary for Disabilities and Carers to FXAA explaining the new services available to people
with fragile X syndrome. - FX Raffle details
- Workshops and Clinics Update
- Grant from Newman’s Own Foundation (with upcoming presentation on TV’s “A Current Affair”) and the
- Grant from Brenda Best Charitable Trust
- Success in Application for PhD Scholarship, 2011-2013
- FXTAS: A New Study May Shed Light on the Syndrome in Older Men
- Fragile X and Neurogenetics Research in Melbourne, Australia.
- What Have I Changed My Mind About? – Article by Marcia Braden, psychologist and special education consultant in Colorado Springs
- Member’s Story:Don and Dorothy Roberts. Response from Professor Gillian Turner
- Tim Dances at Disneyland
- State Support News
fx info Newsletter Autumn 2010
April 7th, 2010
Highlights
- The Honourable Bill Shorten, the Parliamentary Secretary for Disabilities & Children’s Services meets with FXAA committee members.
- The National Library’s PANDORA Archive include our FX INFO newsletter in their archives.
- FX Carrier Support article.
- Hobart Seminar report.
- Australian and New Zealand Fragile X Family Survey
- Article by Marcia Braden, PHD – ‘Reality Check’. Marcia discusses popular parenting advice in relation to children with Fragile X.
- Funding Update
- Strategy Day report
- News from the States
Read the full newsletter:fx info Newsletter Autumn 2010
fx info Newletter Spring 09
October 2nd, 2009
Highlights
- From November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and family
forums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental
Disorders) Institute in UC Davis in America. Seminar Registration Form - Fragile X Christmas Cards 2009 on sale
- Profile – Professor Kim Cornish – Fragile X researcher and Professor of Psychology at Monash University in Melbourne.
- National Fragile X Survey Extended – If you haven’t had time to complete the survey on line we have now extended
the survey until the end of October. - Article – Fragile X syndrome and reproductive genetics in the 21st century by Dr Ken Maclean Clinical Geneticist
- Article – Kids are still Kids by Azma Hoskins
- Committee member Doug Rogers is Mosman Daily’s Father of the Year and one of 20 finalists for the NSW Community Father of the Year.
- Review of Fragile X Awareness Day
- News from the state support groups.
Read online or download and save: fx info Spring 2009
Newsletter Spring 2008
September 17th, 2008
Highlights
- Report on Fragile X Association team in the City 2 Surf
- 2008 Christmas cards
- Report on the 11th International Fragile X Conference
- Paper on supportive living by Family Advocacy
- Article – Drugs may offer some hope in autism cases
- Personal story on successful de-institutionalisation.
- Report on Fragile X Awareness Day 2008
- Updates from the State Support Groups
Read online or download and save: fx info Spring 2008
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