Free One Day Workshop

  After the success of last year’s fundraising, the NSW team are again organising a Fragile X City to Surf team this year. Last year we were in the top 10 fundraisers and raised over $8000. This was a great achievement,so lets see what we can do in 2009! Getting involved in this event on August 9th would be a great opportunity to raise funds as well as providing an enjoyable (hopefully sunny) occasion for all involved.

If you are interested in being part of the team you will need to register in the City to Surf . Additionally, you can create your very own fundraising account as part of the Everyday Hero organisation.  Remember to put in the team password of cgk174 on the next page after creating your own page.  Go to Everyday Hero and register. 

After creating an account you can see the team’s participants and watch  fundraising figures grow as more kind people donate.  Through forwarding your fundraising webpage to your friends, colleagues and families they can donate a chosen amount to sponsor you in the run, from $5 to $500, every dollar raised is an excellent accomplishment in itself.

When you register we will also send you one of great Fragile X syndrome t-shirts  to wear on the run.  Last year’s team made a big impression with these black t-shirts. Just contact Christine or phone Jocelyn on 1300 394 636.

Our Queensland team are also having an active fundraising occasion, the Bridge to Brisbane on the 30th August 2009 .

Mel is also organising a Fragile X team to enter this event which will see an anticipated  40,000 participants of all ages and fitness levels take part in Queensland’s biggest annual fun run.  You don’t need to be an elite sportsman to join in on the 5km course, just run or walk your way to the finish line.

Please contact Mel Mikkelsen  if you are interested in promoting Fragile X awareness in this way and also help us to raise funds to support families affected by Fragile X syndrome. 

South Australia has also fielded a team in the City-Bay fun run on the 20th September. Kimberly and Mark Scott are running to raise awareness in South Australia.  You can support them by going to their Everyday Hero webpage to sponsor Kimberly.

On looking up our webpage Brenton Phillips was disappointed to see that there was no Parent Support Group in South Australia so he decided it was time to start one up!

Brenton would love to get in touch with other families in South Australia who are affected by Fragile X. He is keen to organise family days and give representation to other families with Fragile X children and Fragile X adults in South Australia. Anticipated activities include family days, workshops and parent support.

Brenton

Brenton is the father of 2 boys, the youngest, Matthew, has Fragile X Syndrome.

Matthew wasn’t diagnosed until he was 41/2 and therefore missed out on early intervention which made life difficult as his speech and communication skills were delayed. Matt is in year 5 and loves his cricket and footy. He is a very stylish left handed batsman and when he first started playing in C Grade with mainstream kids, the others thought he wouldn’t be any good, they soon found this out to be wrong when Matty smashed them all over the ground!

Matthew is very close to his older brother and has a wicked sense of humour as you can see from some of the photos here.

If you wish to contact Brenton regarding the South Australia Support Group please visit our South Australia Page for details