Highlights

• Emeritus Professor Grant Sutherland at our Fragile X seminar in Adelaide.
• Australian and New Zealand Fragile X Family Survey(no.2).
• Searching for a cure for James.
• Fragile X testing.
• Adelaide workshop and clinic
• News from the States
• Fragile X Awareness Day

Read the full newsletter: Note: There is a file embedded within this post, please visit this post to download the file.

Highlights

• The Honourable Bill Shorten, the Parliamentary Secretary for Disabilities & Children’s Services meets with FXAA committee members.
• The National Library’s PANDORA Archive include our FX INFO newsletter in their archives.
• FX Carrier Support article.
• Hobart Seminar report.
• Australian and New Zealand Fragile X Family Survey
• Article by Marcia Braden, PHD – ‘Reality Check’. Marcia discusses popular parenting advice in relation to children with Fragile X.
• Funding Update
• Strategy Day report
• News from the States

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• $30,000 grant from The Fred Archer Charitable Trust managed by Trust Company Ltd for mobile Fragile X syndrome workshops. The next mobile workshops to be held with the Fragile X Alliance clinic in Hobart on March 12 and in Adelaide on 23rd April.
• Newborn Screening for Fragile X syndrome.
• Fragile X Update seminars reviewed. The seminars featuring Professor Randi Hagerman and Louise Gane, MSc were held in Melbourne, Sydney and Brisbane in November.
• Committee Focus. Highlighting some of the achievements of the Committee in 2009.
• News from the state support groups.

Read the full newsletter: Note: There is a file embedded within this post, please visit this post to download the file.

Highlights

• From November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and family
  forums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental
  Disorders) Institute in UC Davis in America. Seminar Registration Form
• Fragile X Christmas Cards 2009 on sale
• Profile – Professor Kim Cornish – Fragile X researcher and Professor of Psychology at Monash University in Melbourne.
• National Fragile X Survey Extended – If you haven’t had time to complete the survey on line we have now extended
  the survey until the end of October.
• Article – Fragile X syndrome and reproductive genetics in the 21st century by Dr Ken Maclean Clinical Geneticist
• Article – Kids are still Kids by Azma Hoskins
• Committee member Doug Rogers is  Mosman Daily’s Father of the Year and one of 20 finalists for the NSW Community Father of the Year.
• Review of Fragile X Awareness Day
• News from the state support groups.

Read online or download and save: fx info Spring 2009

S

Highlights

• It is almost the end of the financial year and this is a timely reminder that donations to the association are tax-deductible.
• We have purchased 2 copies of the Living with Fragile X DVD. Members can borrow it through our library.
• Professor Randi Hagerman and Louise Gane are visiting us in November. They are starting off in New Zealand and then will be giving presentations in Melbourne , Sydney and Brisbane.
• Marcia Braden’s article "Public or Private" discusses teaching children to discriminate between private and public behaviors.
• Alison Archibald talks of research, carried out in Victoria, assessing how practical it is to offer population carrier screening for Fragile X Syndrome.
• News from the state support groups.

Read online or download and save: fx info Winter 2009

Highlights

• Don Bailey’s visit to Australia
• Article by Dr Lesley Powell – Information for teachers and Home Care Professionals
• Article on Egg Vitrification and new technology by Sydney IVF.
• Article on  Premature Ovarian Failure (POFS) and a family’s personal experiences.
• Megan, who is affected by Fragile X, tells us a little about herself, her symptoms, her TAFE qualifications and work background.
• Mel tells us about The Wynnum Christmas Carols and thanks those who donated goods, services and their time.
• News from the States.

You can read the newsletter online or download and save: fx info Autumn 2009

Highlights

• Article by Danuta Loesch MD PHD, Senior Research Fellow at the School of Psychological
  Science, La Trobe University, Melbourne, on her current and past research into Fragile X:
  “Studies of Genotype-phenotype Relationships in Fragile X:
  Current research and a Historical Perspective”
• Article by Christine Kelleher our NSW Parent Support Co-ordinator on “What to do after School”
• Fragile X: Unraveling Autism’s Secrets – Time Magazine Article
• Report on the recent Brisbane Fragile X Seminar
• News from our Fragile X Clinics
• Update on our Carrier Support Group
• Updates from the State Support Groups

Read online or download and save: fx info Summer 2008

Highlights

• Report on Fragile X Association team in the City 2 Surf
• 2008 Christmas cards
• Report on the 11th International Fragile X Conference
• Paper on supportive living by Family Advocacy
• Article – Drugs may offer some hope in autism cases
• Personal story on successful de-institutionalisation.
• Report on Fragile X Awareness Day 2008
• Updates from the State Support Groups

Read online or download and save: fx info Spring 2008

Highlights

• Introducing the National Committee
• New National Logo
• Fragile X Awareness Day
• What’s New at the Office
• Fragile X Research in Australia
• Fragile X Clinic Update
• Achievement Awards
• ANXIETY—JUST HOW BAD IS IT?
  
  by Marcia Braden PhD

Read online or download and save: fx info Winter 2008

Read online or download and save: fx info Autumn 2008