Highlights

• From November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and family
  forums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental
  Disorders) Institute in UC Davis in America. Seminar Registration Form
• Fragile X Christmas Cards 2009 on sale
• Profile – Professor Kim Cornish – Fragile X researcher and Professor of Psychology at Monash University in Melbourne.
• National Fragile X Survey Extended – If you haven’t had time to complete the survey on line we have now extended
  the survey until the end of October.
• Article – Fragile X syndrome and reproductive genetics in the 21st century by Dr Ken Maclean Clinical Geneticist
• Article – Kids are still Kids by Azma Hoskins
• Committee member Doug Rogers is  Mosman Daily’s Father of the Year and one of 20 finalists for the NSW Community Father of the Year.
• Review of Fragile X Awareness Day
• News from the state support groups.

Read online or download and save: fx info Spring 2009

S

Highlights

• It is almost the end of the financial year and this is a timely reminder that donations to the association are tax-deductible.
• We have purchased 2 copies of the Living with Fragile X DVD. Members can borrow it through our library.
• Professor Randi Hagerman and Louise Gane are visiting us in November. They are starting off in New Zealand and then will be giving presentations in Melbourne , Sydney and Brisbane.
• Marcia Braden’s article "Public or Private" discusses teaching children to discriminate between private and public behaviors.
• Alison Archibald talks of research, carried out in Victoria, assessing how practical it is to offer population carrier screening for Fragile X Syndrome.
• News from the state support groups.

Read online or download and save: fx info Winter 2009

Highlights

• Don Bailey’s visit to Australia
• Article by Dr Lesley Powell – Information for teachers and Home Care Professionals
• Article on Egg Vitrification and new technology by Sydney IVF.
• Article on  Premature Ovarian Failure (POFS) and a family’s personal experiences.
• Megan, who is affected by Fragile X, tells us a little about herself, her symptoms, her TAFE qualifications and work background.
• Mel tells us about The Wynnum Christmas Carols and thanks those who donated goods, services and their time.
• News from the States.

You can read the newsletter online or download and save: fx info Autumn 2009

Highlights

• Article by Danuta Loesch MD PHD, Senior Research Fellow at the School of Psychological
  Science, La Trobe University, Melbourne, on her current and past research into Fragile X:
  “Studies of Genotype-phenotype Relationships in Fragile X:
  Current research and a Historical Perspective”
• Article by Christine Kelleher our NSW Parent Support Co-ordinator on “What to do after School”
• Fragile X: Unraveling Autism’s Secrets – Time Magazine Article
• Report on the recent Brisbane Fragile X Seminar
• News from our Fragile X Clinics
• Update on our Carrier Support Group
• Updates from the State Support Groups

Read online or download and save: fx info Summer 2008

Highlights

• Introducing the National Committee
• New National Logo
• Fragile X Awareness Day
• What’s New at the Office
• Fragile X Research in Australia
• Fragile X Clinic Update
• Achievement Awards
• ANXIETY—JUST HOW BAD IS IT?
  
  by Marcia Braden PhD

Read online or download and save: fx info Winter 2008

Read online or download and save: fx info Autumn 2008