Newsletters
fx-info Newsletter Summer 2011
January 9th, 2012Read the Full Newsletter: fx info Newsletter Summer 2011
Highlights
- Farewell to Jane Davidson, our Social Worker
- Welcome to our new Counsellor, Janie Roberts, who is providing free counselling to families, couples, siblings and individuals by telephone and by face to face sessions at our office in Manly.
- Updates on our clinics, workshops and the Better Start Initiative
- Clinical Trial in Adolescents with Fragile X
- About our soon to be released Fragile X DVD
- Mike Baird’s, Member for Manly and NSW Treasurer, annual community fundraiser. Fragile X Australia was one of the two beneficiaries of the night.
- Updates from Linda Blair our Office Manager
- Member’s Story – Hugh at 22—life in the bus lane
- Fragile X Research Symposium Brisbane
- Article summary: “What we know or need to know about Fragile X premutation – a brief account”, by Dr Danuta Z Loesch, Senior Research Fellow, School of Psychological Science, La Trobe University. The full article is available on our documents for download page
- Launch of the new book by Robyn Iredale, “Growing Up with Fragile X Syndrome—the Road to Marty Campbell”
- State Support News
fx-info Newsletter Spring 2011
October 19th, 2011Read the Full Newsletter: fx info Newsletter Spring 2011
Highlights
- Farewell to our Office Manager, Jocelyn Selwood and Dominica Kazan, Case Worker.
- Welcome and Introductions to:
- Our new staff: Linda Blair (Office Manager), Joan MacDonald (Case Worker/Administration) and Margot Stolle (Communications Officer)
- Our new board members: Greg Peate and Simone Zaia - Research Particpants needed for:
- FXTAS Study: the effects of the “premutation” of the Fragile X gene in older men
- Step Ahead Project – An Australian Study of families who carry the Fragile X gene – carrier participants required.
- Study: “Attention and activity profiles in children with different developmental disabilities”. - New Book by board member, Robyn Iredale, “Growing up with Fragile X Syndrome: The Road to Marty Campbell” about her son’s journey with Fragile X Syndrome.
- FXAA Achievement and Merit Awards 2011
- Member’s Story: Janine Peate
- 2011 Awareness Campaign
- Workshops
- State news
fx-info Newsletter Winter 2011
June 8th, 2011Read the Full Newsletter: fx info Newsletter Autumn 2011
Highlights
- Our office move
- FXAA Research Symposium
- Better Start Initiative
- Carrier Research
- FX Clinic and Workshop
- Upcoming workshops, information sessions
- Member’s stories
- State news and events
fx info Newsletter Autumn 2011
March 20th, 2011Read the Full Newsletter: fx info Newsletter Autumn 2011
Highlights
- From April the office hours will be extended to Monday to: Friday 9am to 4pm
- Introducing our new team members:
- John O‘Connor, Executive Director
- Social worker, Jane Davidson
- Liz Howarth, family support representative in
Canberra - Novartis Fragile X Clinical Trial of AFQ056 in Australia
- Meeting with Senator the Honourable Jan McLucas, Federal Parliamentary Secretary for Disabilities and Carers
- Information on:
- National Disability Insurance Scheme
- Federal Government‘s “Better Start Initiative”
- Sydney IVF – PGD Assistance Program
- Productivity Commission’s
“Disability Care and Support” draft report - NSW Respite Camps
- Member’s stories
- State news and events
fx info Newsletter Summer 2010
December 9th, 2010
Read the Full Newsletter:
Highlights
- Will Delaat, chair of Medicines Australia and FXAA board member,addresses the National Press Club
- “Letter from the President”, John Kelleher
- Letter from the new Parliamentary Secretary for Disabilities and Carers to FXAA explaining the new services available to people
with fragile X syndrome. - FX Raffle details
- Workshops and Clinics Update
- Grant from Newman’s Own Foundation (with upcoming presentation on TV’s “A Current Affair”) and the
- Grant from Brenda Best Charitable Trust
- Success in Application for PhD Scholarship, 2011-2013
- FXTAS: A New Study May Shed Light on the Syndrome in Older Men
- Fragile X and Neurogenetics Research in Melbourne, Australia.
- What Have I Changed My Mind About? – Article by Marcia Braden, psychologist and special education consultant in Colorado Springs
- Member’s Story:Don and Dorothy Roberts. Response from Professor Gillian Turner
- Tim Dances at Disneyland
- State Support News
fx info Newsletter Spring 2010
September 19th, 2010
Highlights
- 2010 Christmas Cards Order Form
- Fragile X Awareness Day 2010
- Workshop/Clinic News
- Australian and New Zealand Fragile X Family Survey Report
- 2010 AGM Minutes
- Minocyline preliminary study results
- News from the States
Read the full newsletter: fx info Newsletter Spring 2010
fx info Newsletter Winter 2010
June 16th, 2010
Highlights
- Emeritus Professor Grant Sutherland at our Fragile X seminar in Adelaide.
- Australian and New Zealand Fragile X Family Survey(no.2).
- Searching for a cure for James.
- Fragile X testing.
- Adelaide workshop and clinic
- News from the States
- Fragile X Awareness Day
Read the full newsletter: fx info Newsletter Winter 2010
fx info Newsletter Autumn 2010
April 7th, 2010
Highlights
- The Honourable Bill Shorten, the Parliamentary Secretary for Disabilities & Children’s Services meets with FXAA committee members.
- The National Library’s PANDORA Archive include our FX INFO newsletter in their archives.
- FX Carrier Support article.
- Hobart Seminar report.
- Australian and New Zealand Fragile X Family Survey
- Article by Marcia Braden, PHD – ‘Reality Check’. Marcia discusses popular parenting advice in relation to children with Fragile X.
- Funding Update
- Strategy Day report
- News from the States
Read the full newsletter:fx info Newsletter Autumn 2010
Subscribe