You can also buy our cards directly by downloading the form and either faxing it to 02 9976 2396 or posting it to The Fragile X Association, PO Box 109, Manly NSW 1655.

You can order the cards by downloading the form and either faxing it to 02 9976 2396 or posting it to The Fragile X Association, PO Box 109, Manly NSW 1655.

Presents

Xmas Trio

Xmas Tree

Angels

Highlights

• 2010 Christmas Cards Order Form
• Fragile X Awareness Day 2010
• Workshop/Clinic News
• Australian and New Zealand Fragile X Family Survey Report
• 2010 AGM Minutes
• Minocyline preliminary study results
• News from the States

Read the full newsletter: fx info Newsletter Spring 2010

Fragile X Awareness Day on July 22nd is to promote the awareness of Fragile X syndrome. The incidence of Fragile X can be significantly reduced through awareness and early intervention assists in providing support and strategies to
help improve the quality of life of a Fragile X child. In Australia, it is estimated that one child every week is born with Fragile X and twelve are born carriers.

Please support the Fragile X Association of Australia through Fragile X Awareness Day by holding morning teas, having sausage sizzles or just talking about Fragile X syndrome to your family, friends and colleagues.  Fragile X Awareness events can be held throughout July.

If you are holding an event please contact the Fragile X Association on 1300 FX INFO (1300 394 636) for information on fundraising.  We have posters available that were designed by RU Advertising and printed by Sydney IVF.  Also we have pens and ribbons for sale for $2. Just contact Jocelyn or Bernadette at the office to order your supplies.

If you are a school or organisation, please download our schools package [download id="28"]

• Run Melbourne July 18, 2010,: to date we have 4 participants in RunMelbourne on Sunday July 18.  Jannine Davey, Kelly Amore, Sarah Donahue and Brendan Fitzgerald. You can sponsor them through the Everyday Hero website:  

  http://runmelbourne.everydayhero.com.au/

• City2Surf August 8 2010: we have a team running in the City2Surf on Sunday August 8. If you are interested in being part of the team you will need to register in the City2Surf http://city2surf.com.au/. You can be part of the fundraising by creating your own fundraising account. Register on http://www.everydayhero.com.au/Fragile_X_2010 and click on Join this team in the top right hand corner of the fundraising page. You then create your own fundraising page and follow the prompts – the team password is ‘fxteam’.  It is a wonderful opportunity to meet other fragile X families and be part of the general atmosphere that the City 2 Surf creates.   At the conclusion, the Kellehers will run the usual BBQ (this is a fun occasion especially for our FX kids) at their home.  

•  Bridge to Brisbane August 29, 2010: The Bridge to Brisbane is on Sunday 29 August and we will be having a team.  

• City-Bay September 19, 2010:  The Adelaide City-Bay is on Sunday September 19 and there will be Fragile X  team.

We will be updating this post for the Brisbane and Adelaide fun runs once the teams have registered.

Highlights

• Emeritus Professor Grant Sutherland at our Fragile X seminar in Adelaide.
• Australian and New Zealand Fragile X Family Survey(no.2).
• Searching for a cure for James.
• Fragile X testing.
• Adelaide workshop and clinic
• News from the States
• Fragile X Awareness Day

Read the full newsletter: fx info Newsletter Winter 2010

Highlights

• The Honourable Bill Shorten, the Parliamentary Secretary for Disabilities & Children’s Services meets with FXAA committee members.
• The National Library’s PANDORA Archive include our FX INFO newsletter in their archives.
• FX Carrier Support article.
• Hobart Seminar report.
• Australian and New Zealand Fragile X Family Survey
• Article by Marcia Braden, PHD – ‘Reality Check’. Marcia discusses popular parenting advice in relation to children with Fragile X.
• Funding Update
• Strategy Day report
• News from the States

Read the full newsletter:fx info Newsletter Autumn 2010

• $30,000 grant from The Fred Archer Charitable Trust managed by Trust Company Ltd for mobile Fragile X syndrome workshops. The next mobile workshops to be held with the Fragile X Alliance clinic in Hobart on March 12 and in Adelaide on 23rd April.
• Newborn Screening for Fragile X syndrome.
• Fragile X Update seminars reviewed. The seminars featuring Professor Randi Hagerman and Louise Gane, MSc were held in Melbourne, Sydney and Brisbane in November.
• Committee Focus. Highlighting some of the achievements of the Committee in 2009.
• News from the state support groups.

Read the full newsletter: fx info Newsletter Summer 2009

Highlights

• From November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and family
  forums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental
  Disorders) Institute in UC Davis in America. Seminar Registration Form
• Fragile X Christmas Cards 2009 on sale
• Profile – Professor Kim Cornish – Fragile X researcher and Professor of Psychology at Monash University in Melbourne.
• National Fragile X Survey Extended – If you haven’t had time to complete the survey on line we have now extended
  the survey until the end of October.
• Article – Fragile X syndrome and reproductive genetics in the 21st century by Dr Ken Maclean Clinical Geneticist
• Article – Kids are still Kids by Azma Hoskins
• Committee member Doug Rogers is  Mosman Daily’s Father of the Year and one of 20 finalists for the NSW Community Father of the Year.
• Review of Fragile X Awareness Day
• News from the state support groups.

Read online or download and save: fx info Spring 2009