We have changed our office location. You can now find us at:
Suite 6, Level 3,
39 East Esplanade,
Manly NSW 2095

Our telephone and fax numbers remain the same:

• Office: 1300 FX INFO (1300 394 636)
• For Fragile X support other times: Mobile: 0409 987 012
• Fax: 02  9976 2396

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Fragile X Syndrome

The Fragile X Association have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free seminar is open to health professionals, educators and families and carers of people affected with Fragile X syndrome.  The Better Start Initiative begins on July 1st so take the opportunity to learn more about fragile X.

All speakers are recognised experts in their field and will cover a wide range of management strategies relevant to developmental disabilities and autism spectrum disorders.

For more details please download the Townsville Seminar Flyer, which includes the booking form, and the Draft Agenda.

The Fragile X Association would like to thank Newman’s Own for their funding of this seminar.

Highlights of Year End June 10 Financial Statements

Income up from $100,000 to $168,000

• Donations/grants up from $77,000 to $140,000
  • second of three $50,000 philanthropic donations
  • one off $30,000 grant for mobile workshops
  • $12,000 from Masonic groups in Brisbane and Sydney
  • over $8,000 from folding in of Victorian association
  • a number of smaller grants
  • member donations up over 50% to $6,400
  • fun runs $11,000
• Membership subscriptions up 19% to $5,375  (membership now 215)
• Various events raised $19,000 ($14,000 LY)

Expenditure up from $77,000 to $157,700

• $63,000 for clinics and workshops (up from $20,000 LY)
• $5,000 for printing “Fragile What” brochure
• $10,000 for Randi Hagerman conferences in Melbourne, Sydney and Brisbane
• Administration expenses up to $38,500 – mainly due to full year of office rental and additional staff administration costs

Surplus of $10,800 ($23,000 last year) leaving accumulated funds of $92,000

Performance ratios continued in good order

• Total cost fundraising/Gross fundraising income          4% (LY 8%)
• Net fundraising surplus/Gross fundraising income      96% (LY 92%)
• Total costs of services/Total expenditure                71% (LY 71%)
• Total costs of services/Total income                     67% (LY 55%)

Looking ahead

Additional funding needed to strengthen awareness program/lobbying and fund more research while maintaining clinic/workshop program at least at existing level.

You can download a copy of our Financial Statements for the year ending 30th June 2010 from the following page:

Financial Statements 2010

The Fragile X Association of Australia would like to thank  Pages and Pages of Mosman, Sydney, and the Constant Reader of Crows Nest, Sydney for their support in selling our Christmas cards once again this year. Pages and Pages and the Constant Reader have been a great support to the Association through the selling of our cards over the years. 

You can also buy our cards directly by downloading the form and either faxing it to 02 9976 2396 or posting it to The Fragile X Association, PO Box 109, Manly NSW 1655.

The Fragile X Association has been invited by the Federal Government to join National Compact. The National Compact reflects the commitment of the Government and the Third (not-for-profit) Sector to find new and better ways to work together.

This collaborative relationship will allow the partners to work on the challenges they face, build a stronger Third Sector in Australia and through this, drive innovation, wellbeing and sustainability in our communities.

If you wish to read more about National Compact visit the website where you can download a copy of the National Compact, and view updates as the National Compact action plans are developed. You can also follow progress with the Compact via Twitter – @nationalcompact.

At our recent AGM on the 21st August the Fragile X Association of Australia’s Constitution was updated to encompass the new NSW laws for Associations. Also, the Committee considered that experience over recent years required a review of the Constitution, its governance and operation.  

In addition to bringing the Constitution into line with the new model rules, the new Constitution represents the Association’s carefully considered views about expanding the scope of categories of membership to include extended family, professionals involved with fragile X syndrome and any person with a demonstrated commitment to advancing the objects of the Association.  Also, it includes modifications to the Board structure and procedures. There is no change to the Objects of the Association given their importance.  The  2010 Constitution was accepted for registration.