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Fragile X Association joins National Compact
October 4th, 2010The Fragile X Association has been invited by the Federal Government to join National Compact. The National Compact reflects the commitment of the Government and the Third (not-for-profit) Sector to find new and better ways to work together. This collaborative relationship will allow the partners to work on the challenges they face, build a stronger Third Sector [...]
Christmas Cards 2010
September 22nd, 2010The Fragile X Association has 4 great new designs for their Christmas cards this year. You not only support the Association through buying our cards you also increase awareness of fragile X syndrome. Each card has a brief explanation about Fragile X and includes our contact details. You can order the cards by downloading the form and either faxing [...]
Fragile X Awareness Day Media
July 21st, 2010On Tuesday July 20th TV channels 7, 9 and the ABC did segments on fragile X syndrome on the Sydney news. We were very pleased that our probono media advisor, Virginia Nichols, was successful in organising the media launch for Fragile X Awareness Day and wish to thank her for her enthusiastic support and the incredible amount of time [...]
FRAGILE X AWARENESS DAY 22 JULY
July 13th, 2010Fragile X Awareness Day 22nd July 2010 Fragile X Awareness Day on July 22nd is to promote the awareness of Fragile X syndrome. The incidence of Fragile X can be significantly reduced through awareness and early intervention assists in providing support and strategies to help improve the quality of life of a Fragile X child. [...]
Support Fragile X teams in city fun runs
June 16th, 2010Fragile X teams in 4 city fun runs! Run Melbourne July 18, 2010,: to date we have 4 participants in RunMelbourne on Sunday July 18. Jannine Davey, Kelly Amore, Sarah Donahue and Brendan Fitzgerald. You can sponsor them through the Everyday Hero website: http://runmelbourne.everydayhero.com.au/ City2Surf August 8 2010: we have a team running in the City2Surf [...]
fx info Newsletter Winter 2010
June 16th, 2010Highlights Emeritus Professor Grant Sutherland at our Fragile X seminar in Adelaide. Australian and New Zealand Fragile X Family Survey(no.2). Searching for a cure for James. Fragile X testing. Adelaide workshop and clinic News from the States Fragile X Awareness Day Read the full newsletter: fx info Newsletter Winter 2010
Adelaide Fragile X Seminar
March 9th, 2010Free One Day Workshop Adelaide Friday 23rd April 2010 Fragile X Syndrome The Fragile X Association, through funding from the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile X syndrome. This free workshop is open [...]
Hobart Fragile X workshop
January 27th, 2010Free One Day Workshop Hobart Friday 12th March 2010 Fragile X Syndrome The Fragile X Association, through the sponsorship of the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile X syndrome. This free workshop [...]
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