All entries by this author

Fragile X Association joins National Compact

The Fragile X Association has been invited by the Federal Government to join National Compact. The National Compact reflects the commitment of the Government and the Third (not-for-profit) Sector to find new and better ways to work together. This collaborative relationship will allow the partners to work on the challenges they face, build a stronger Third Sector [...]



Christmas Cards 2010

The Fragile X Association has 4 great new designs for their Christmas cards this year.  You not only support the Association through buying our cards you also increase awareness of fragile X syndrome.  Each card has a brief explanation about Fragile X  and includes our contact details. You can order the cards by downloading the form and either faxing [...]



Fragile X Awareness Day Media

On Tuesday July 20th TV channels 7, 9 and the ABC did segments on fragile X syndrome on the Sydney news.  We were very pleased that our probono media advisor, Virginia Nichols, was successful in organising the media launch for Fragile X Awareness Day and wish to thank her for her enthusiastic support and the incredible amount of time [...]



FRAGILE X AWARENESS DAY 22 JULY

Fragile X Awareness Day 22nd July 2010 Fragile X Awareness Day on July 22nd is to promote the awareness of Fragile X syndrome. The incidence of Fragile X can be significantly reduced through awareness and early intervention assists in providing support and strategies to help improve the quality of life of a Fragile X child. [...]



Support Fragile X teams in city fun runs

Fragile X teams in 4 city fun runs! Run Melbourne July 18, 2010,: to date we have 4 participants in RunMelbourne on Sunday July 18.  Jannine Davey, Kelly Amore, Sarah Donahue and Brendan Fitzgerald. You can sponsor them through the Everyday Hero website:   http://runmelbourne.everydayhero.com.au/ City2Surf August 8 2010: we have a team running in the City2Surf [...]



fx info Newsletter Winter 2010

Highlights Emeritus Professor Grant Sutherland at our Fragile X seminar in Adelaide. Australian and New Zealand Fragile X Family Survey(no.2). Searching for a cure for James. Fragile X testing. Adelaide workshop and clinic News from the States Fragile X Awareness Day Read the full newsletter: fx info Newsletter Winter 2010



Adelaide Fragile X Seminar

Free One Day Workshop Adelaide Friday 23rd April 2010 Fragile X Syndrome The Fragile X Association, through funding from the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free workshop is open [...]



Hobart Fragile X workshop

Free One Day Workshop   Hobart Friday 12th March 2010 Fragile X Syndrome The Fragile X Association, through the sponsorship of the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free workshop [...]