On Tuesday July 20th TV channels 7, 9 and the ABC did segments on fragile X syndrome on the Sydney news.  We were very pleased that our probono media advisor, Virginia Nichols, was successful in organising the media launch for Fragile X Awareness Day and wish to thank her for her enthusiastic support and the incredible amount of time [...]

Fragile X Awareness Day 22nd July 2010 Fragile X Awareness Day on July 22nd is to promote the awareness of Fragile X syndrome. The incidence of Fragile X can be significantly reduced through awareness and early intervention assists in providing support and strategies to help improve the quality of life of a Fragile X child. [...]

Fragile X teams in 4 city fun runs! Run Melbourne July 18, 2010,: to date we have 4 participants in RunMelbourne on Sunday July 18.  Jannine Davey, Kelly Amore, Sarah Donahue and Brendan Fitzgerald. You can sponsor them through the Everyday Hero website:   http://runmelbourne.everydayhero.com.au/ City2Surf August 8 2010: we have a team running in the City2Surf [...]

Highlights Emeritus Professor Grant Sutherland at our Fragile X seminar in Adelaide. Australian and New Zealand Fragile X Family Survey(no.2). Searching for a cure for James. Fragile X testing. Adelaide workshop and clinic News from the States Fragile X Awareness Day Read the full newsletter: fx info Newsletter Winter 2010

Free One Day Workshop Adelaide Friday 23rd April 2010 Fragile X Syndrome The Fragile X Association, through funding from the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free workshop is open [...]

Free One Day Workshop   Hobart Friday 12th March 2010 Fragile X Syndrome The Fragile X Association, through the sponsorship of the Fred Archer Charitable Trust managed by Trust Company Ltd, have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free workshop [...]

$30,000 grant from The Fred Archer Charitable Trust managed by Trust Company Ltd for mobile Fragile X syndrome workshops. The next mobile workshops to be held with the Fragile X Alliance clinic in Hobart on March 12 and in Adelaide on 23rd April. Newborn Screening for Fragile X syndrome. Fragile X Update seminars reviewed. The [...]

The Fragile X Association of Australia would like to thank  Pages and Pages of Mosman, Sydney, and The Constant Reader of Crows Nest, Sydneyfor their support in selling our Christmas cards once again this year. Pages and Pages have been selling our Christmas cards for many years and this is the third year that the Constant Reader [...]