July is Fragile X Awareness Month. The official announcement of this month is set for Tuesday, July 26, 2011. To learn more about the world’s leading inherited cause of intellectual disability and further ground-breaking research into the condition, or to speak to doctors, patients and families affected by Fragile X syndrome on Tuesday, July 26, contact [...]

Under the Australian Government’s new Better Start for Children with Disability initiative, children aged under six years who have been diagnosed with sight or hearing impairments including deafblindness, Down syndrome, cerebral palsy or Fragile X syndrome can register to access early intervention funding of up to $12,000 (to a maximum of $6,000 per financial year). [...]

Fragile X Syndrome The Fragile X Association have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free seminar is open to health professionals, educators and families and carers of people affected with Fragile X syndrome.  The Better Start Initiative begins on July [...]

FREE ONE DAY SEMINAR Shepparton   Friday 1st April 2011 Fragile X Syndrome The Fragile X Association have organised for the Fragile X Alliance team, led by Dr Jonathan Cohen, to provide an overview of Fragile  X syndrome.  This free workshop is open to health professionals, educators and families and carers of people affected with [...]

In this youtube clip Rosie talks about her experience with fragile X syndrome and how it has affected her life.  TBF – Making The Most Of Life

The Fragile X Association of Australia would like to thank  Pages and Pages of Mosman, Sydney, and the Constant Reader of Crows Nest, Sydney for their support in selling our Christmas cards once again this year. Pages and Pages and the Constant Reader have been a great support to the Association through the selling of our cards over [...]

“Modelling the Lifetime Social and Economic Impacts of Fragile X Syndrome and the Benefits of Early Diagnosis and Intervention”  The December 2009 FXAA newsletter referred to an application to the Australian Research Council for a 3-year PhD scholarship, prepared by Professor Laurie Brown, from the National Centre for Social and Economic Modelling (NATSEM), University of [...]

Fragile X Family & Friends Fun Day Sunday November 7th 12 mid-day At: Werribee Park, Enter at Gate 2 near Victorian State Rose Garden. There are BBQ, & rotundas located there. What to Bring: A picnic rug, some food for yourself & family. A sausage sizzle will be provided. Things to Do: Chat, play a [...]