Read the Full Newsletter: fx info Newsletter Autumn 2011   Highlights From April the office hours will be extended to Monday to: Friday 9am to 4pm Introducing our new team members: – John O‘Connor, Executive Director – Social worker, Jane Davidson – Liz Howarth, family support representative in Canberra Novartis Fragile X Clinical Trial of AFQ056 [...]

FREE ONE DAY SEMINAR Canberra Friday 15th April 2011 Fragile X Syndrome Fragile X Association of Australia have arranged for the Fragile X clinic team from the Children’s Hospital at Westmead to present an overview of Fragile X Syndrome for Health Professionals, Educators and Families.  Update yourself on the latest information on this important cause [...]

Our Association supports the introduction of  the National Disability Insurance Scheme and the scheme’s “Every Australian Counts” campaign. The NDIS is a proposed system to change the way services for people with disabilities, their families and carers, are funded and structured; to provide them with the regular care, support, therapy and equipment they need. The [...]

Read the Full Newsletter: fx info Newsletter Summer 2010 Highlights Will Delaat, chair of Medicines Australia and FXAA board member,addresses the National Press Club “Letter from the President”, John Kelleher Letter from the new Parliamentary Secretary for Disabilities and Carers to FXAA explaining the new services available to people with fragile X syndrome. FX Raffle [...]

Highlights of Year End June 10 Financial Statements Income up from $100,000 to $168,000 Donations/grants up from $77,000 to $140,000 second of three $50,000 philanthropic donations one off $30,000 grant for mobile workshops $12,000 from Masonic groups in Brisbane and Sydney over $8,000 from folding in of Victorian association a number of smaller grants member [...]

At our recent AGM on the 21st August the Fragile X Association of Australia’s Constitution was updated to encompass the new NSW laws for Associations. Also, the Committee considered that experience over recent years required a review of the Constitution, its governance and operation.   In addition to bringing the Constitution into line with the new [...]

Highlights 2010 Christmas Cards Order Form Fragile X Awareness Day 2010 Workshop/Clinic News Australian and New Zealand Fragile X Family Survey Report 2010 AGM Minutes Minocyline preliminary study results News from the States Read the full newsletter: fx info Newsletter Spring 2010

The new version of our booklet, “Fragile What?”,  is now available for download. This is an ideal introduction to Fragile X Syndrome which can be handed out to family, friends, teachers, therapists and medical professionals.  Areas covered include: Behavioural Characteristics Intelligence Speech and Language Physical Characteristics How is Fragile X Syndrome Inherited? What Causes Fragile [...]