The National Center on Birth Defects and Developmental Disabilities (NCBDDD) website includes a very useful section on Fragile X including: Facts about Fragile X Syndrome – which includes links to articles on Causes, Inheritance and Treatment (Therapeutic, Educational, Early Intervention) Associated Disorders Data & Statistics Articles Free Materials -downloadable fact sheets and booklets The video [...]

Dr Michael Field and Professor Kim Cornish have kindly given us permission to upload an article they wrote as an invited contribution to the upcoming website physicalasanything.com.au. The article gives an excellent overview of Fragile X Syndrome and includes sections on: Inheritance Challenges and Strenths of Fragile X Students An explanation of X-Linked Inheritance Female [...]

An Australian Study of families who carry the fragile X gene The Australian Research Council (ARC) has funded a 3 year study to help families, health professionals and educators understand how being a carrier of fragile X impacts on Australian families. For many years, individuals who carried the fragile X gene (carriers) were assumed to [...]

Read the Full Newsletter: fx info Newsletter Autumn 2011   Highlights Our office move FXAA Research Symposium Better Start Initiative Carrier Research FX Clinic and Workshop Upcoming workshops, information sessions Member’s stories State news and events

We have changed our office location. You can now find us at: Suite 6, Level 3, 39 East Esplanade, Manly NSW 2095 Our telephone and fax numbers remain the same: Office: 1300 FX INFO (1300 394 636) For Fragile X support other times: Mobile: 0409 987 012 Fax: 02  9976 2396   View Fragile X [...]

This wonderful video was created to celebrate Mother’s day. The YouTube video is composed of photos of mothers with their children who are impacted by Fragile X Syndrome. Many of the photos were submitted by parents who are part of the international Fragile X community on Facebook. Thanks to Holly Roos and Melissa and Eric [...]

Written by Sue Bride My online life began primarily as a means to find out more about Fragile X, after my son was diagnosed in 1994. There was so little information available and even the paediatrician who diagnosed him knew only some of the physical signs to look for; just enough to send him for [...]

Professor Kim Cornish, a FXAA board member, has had an article about Fragile X,  “ADHD, autism or something else entirely?“,  published by the online news site The Conversation. Kim, a Developmental Neuroscientist, is Head of Discipline – Psychology, Deputy Head of the School of Psychology and Psychiatry and is the Director of the Developmental Neuroscience [...]