The Fragile X Association is now offering counselling to those affected by fragile X and their supporters. Our Counsellor Janie Roberts has a postgraduate diploma in counselling and psychotherapy. The counselling service is free and is dependent on your  individual need so can either be offered on a one off basis or for the longer [...]

The Fragile X Association of Australia Inc financial reports for the year 2010-2011 are now available for you to view online (PDF format): Financial Statements 30th June 2011 Annual Report, Presidents Report 2010-2011 You can also find links to these and previous reports on our  Downloads Page.  

Read the Full Newsletter: fx info Newsletter Summer 2011 Highlights Farewell to Jane Davidson, our Social Worker Welcome to our new Counsellor, Janie Roberts, who is providing free counselling to families, couples, siblings and individuals by telephone and by face to face sessions at our office in Manly. Updates on our clinics, workshops and the [...]

Documents relating to the Fragile X Research Symposium, held in Brisbane on 4th October, 2011, are now available for download from this site. FragileX Research Symposium Brisbane – Agenda An examination of neuromotor and brain ‘signatures ‘ in FMR1 premutation carriers – Rachael Birch Novel Technology for Fragile X Population Screening – Dr David Godler, [...]

The Child Development Unit at The Children’s Hospital at Westmead is participating in a clinical trial testing a new treatment for Fragile X syndrome in adolescents. The treatment is a capsule and the medication is taken twice daily for up to 16 weeks. To be eligible to participate in the trial, patients must fit the [...]

Read the Full Newsletter: fx info Newsletter Spring 2011 Highlights Farewell to our Office Manager, Jocelyn Selwood and Dominica Kazan, Case Worker. Welcome and Introductions to: – Our new staff: Linda Blair (Office Manager), Joan MacDonald (Case Worker/Administration) and Margot Stolle (Communications Officer) – Our new board members: Greg Peate and Simone Zaia Research Particpants needed for: [...]

Thank you to all our members who took part in Awareness Month activities.  Thank you also to VivaCommunications who were tireless in promoting our cause to the various media outlets which resulted in extensive media coverage in July. We are pleased that Australian TV, radio and newspapers helped promote Fragile X Awareness and the upcoming [...]

New Resources added to our documents for download section: Fragile X Syndrome Fact Sheet – Learn basic facts about fragile X syndrome. * Families and Fragile X Syndrome This booklet from the National Institutes of Health for parents and families explains fragile X, its causes, its symptoms and associated disorders, and its treatments. The booklet [...]