All entries by this author

A Better Start for Children with Disability and Fragile X

Fragile X Syndrome has been given a specific mention by the Prime Minister, Julia Gillard, in the proposed “A Better Start for Children with Disability” scheme. She says that “Children diagnosed with sight and hearing impairments, cerebral palsy, Down syndrome or Fragile X syndrome will benefit under the program”. Although there is as yet no [...]



fx info Newsletter Autumn 2010

Highlights The Honourable Bill Shorten, the Parliamentary Secretary for Disabilities & Children’s Services meets with FXAA committee members. The National Library’s PANDORA Archive include our FX INFO newsletter in their archives. FX Carrier Support article. Hobart Seminar report. Australian and New Zealand Fragile X Family Survey Article by Marcia Braden, PHD – ‘Reality Check’. Marcia [...]



FXA Submission – Inquiry into Provision of Education to Students with a Disability or Special Needs

The Fragile X Association of Australia has entered a submission into the “Inquiry into the Provision of Education to Students with a Disability or Special Needs” being conducted by The NSW Legislative Council of the NSW Parliament. The submission was prepared by Dr Robyn Iredale, PhD, our Association’s Committee Secretary and Adjunct Associate Professor at [...]



Financial Statements 2009

Our Financial Statements for the year ending 30/6/2009 are now available for download: Financial Statements 2009 – PDF File  



The Australia and New Zealand Fragile X Family Survey – Preliminary Overview

The Fragile X Association of Australia conducted the first national survey of fragile X families in Australia and New Zealand in 2009.  The study is an extension of a survey undertaken in the United States in 2008 by Dr Don Bailey from Research Triangle Institute (RTI). In the attached newsletter we present a preliminary overview [...]



Fragile X Books and Videos

Books, DVDs, CDs and handbooks on a range of Fragile X topics are available for purchase either via this site, the National Fragile X Foundation in USA and from Amazon. You can find a list of these and details on where to purchase them on our Books and Videos for Purchase page. Updates: “Fragile X [...]



Wynnum Carols by the Bay

Wynnum Carols by the Bay are being held on  December 19th from 3pm till 9pm at Wynnum Esplanade (George Clayton Park Wynnum), Brisbane, Qld. Thanks to the Wynnum Spring Festival Association, proceeds from the raffles on the night will be donated to The Fragile X Association of Australia. Some of our members will be selling [...]



Christmas Cards

Many thanks to all who bought our Christmas Cards this year. We have now run out of stock. We will be selling them again next year.