John Kelleher, a former Joint Managing Director of a Property Investment Company and a Chartered Surveyor, Joined the committee in 2001 and has been the President of the Association since November 2005. John and his wife Christine have three children, two of whom have Fragile X.

Doug Rodgers has been Treasurer of the Association since 1995. He is a retired business executive. Doug and his wife Jane, have two young adults with Fragile X – Tim and Hugh who are both undertaking a “Transition to Work Program”..

Bruce Donald , AM, is a Sydney lawyer who joined the Committee in 2005. He and his wife Penelope Figgis, an environmental consultant, have two daughters who are Fragile X affected. Their diagnosis led to the diagnosis of Penny’s English cousin for whom the cause of his intellectual disability had never been explained. As a family that had been completely unaware of the condition, Bruce and Penny see the need for a massive effort in public awareness about Fragile X.

Dr Robyn Iredale, Secretary, is a geographer and has taught in high schools and universities in Australia and Canada and worked for the NSW and Commonwealth Governments. For the last twenty years she has been conducting research into migration in the Asia Pacific region. She is a carrier of FXS and has one son who is affected and a daughter and two brothers who are carriers.

Azma Hoskins is the president of the Fragile X Support Group of WA Inc. Azma is the mother of two Fragile X children. She works at Kalparrin, a support centre for families of children with special needs where she takes care of all of the administration officer roles, as well as talking to parents or carers that come into the centre.

Mel Mikkleson Mel has two children, one with Fragile X. She has worked as a teacher aide in a special school and has completed a Behavior Management Workshop as well as a Makaton workshop (Natural gesture sign language) for children who are intellectually impaired, and also has a Certificate 3 in Education Support.

Rick Jones joined the committee in 2001. He is a Business Director in the Mergers and Acquisitions Industry. Rick has been heavily involved in several community organisations such as LifeStart and the Rural Fire Service. He and his wife Nicola have four children, one with Fragile X.

Tim Turpin (BA, PhD) is a Sociologist specialising in science, technology, innovation, industrial change and human resource policies. He is the stepfather of Marty Campbell, a young man with FXS.

Will Delaat has over 30 years experience in the pharmaceutical industry, He has held a variety of roles both in Europe and Australia, and across three different multinational companies. Will holds a B.Sc. (Hons.) from London University (Chemistry/Physiology). He has recently retired as Managing Director of MSD Australia however he has retained his position as Chairman of the Board of Medicines Australia until Dec 2009.Will has been married to Petra for almost 25 years, and they have two teenage children, Rebecca and Alexander.