John Kelleher, a former Joint Managing Director of a Property Investment Company and a Chartered Surveyor, joined the Board in 2001 and has been the President of the Association since November 2005. John has three children, two of whom have Fragile X.

Doug Rodgers has been Treasurer of the Association since 1995. He is a retired business executive. Doug and his wife, Jane, have two young adult sons with Fragile X.

Bruce Donald, AM, is a Sydney lawyer who joined the Board in 2005. He and his wife, Penelope Figgis, an environmental consultant, have two daughters who are Fragile X affected. Their diagnosis led to the diagnosis of Penny’s English cousin for whom the cause of his intellectual disability had never been explained. As a family that had been completely unaware of the condition, Bruce and Penny see the need for a massive effort in public awareness about Fragile X.

Dr Robyn Iredale, (BA, Dip Ed, MA, PhD), Secretary, joined the Board in 2004. She has taught in high schools and universities in Australia and Canada and has read for the NSW and Commonwealth Governments. Robyn now works as a private consultant. She is a carrier of FXS and has one son who is affected and a daughter and two brothers who are carriers. Robyn is a joint author of the Australian and New Zealand Fragile X survey which was completed last year.

Tim Turpin (BA, PhD) is a Sociologist specialising in science, technology, innovation, industrial change and human resource policies. He is the stepfather of Marty Campbell, a young man with FXS. Tim is a joint author of the Australian and New Zealand Fragile X survey which was completed last year.

Will Delaat (B.Sc. Hons.) Will has over 30 years experience in the pharmaceutical industry. He has held a variety of roles both in Europe and Australia, and across three different multinational companies. He has recently retired as Managing Director of MSD Australia however he has retained his position as Chairman of the Board of Medicines Australia and sits on the Boards of two other pharmaceutical companies.

Mel Mikkleson Mel has two children, one with Fragile X. She has worked as a teacher aide in a special school and has completed a Behaviour Management Workshop as well as a Makaton workshop (Natural gesture sign language) for children who are intellectually impaired, and also has a Certificate 3 in Education Support. Mel is the parent support representative for Queensland.

Christine Kelleher is the mother of 3 adult children, 2 with Fragile X. Christine is the parent support representative for NSW.

Professor Kim Cornish is a developmental psychologist and has worked in research on fragile X syndrome including carriers since 1993. She has worked closely with UK Fragile X Society for almost twenty years and is also a board member of the Clinical and Scientific Advisory Board of the National Fragile X Foundation in the USA.  Kim joined Monash University in July 2009 and is the Head of the Discipline of Psychology and Deputy Head of the School of Psychology and Psychiatry.  She has an active research program.

Dr Michael Field is a graduate of the University of Birmingham and he completed his post graduate training in the United Kingdom and Australia. Mike is a Fellow of the Royal Australian College of Physicians, with specialist qualifications in Paediatrics and Clinical Genetics.  He is acting Director of the NSW Genetics of Learning Disability (GOLD) Service, formally referred to as the NSW Fragile X Service. The GOLD Service has close contact with many NSW fragile X families, providing support and information to newly diagnosed families with children with fragile X syndrome, identifying other carrier females in the family and assisting them with difficult reproductive decision making.

Assoc Prof Helen (Honey) S Heussler

(MB BS FRACP MRCPCH DM) Honey is a Developmental and Behavioural Paediatrician and a Sleep physician. She has been working at the Mater Children’s Hospital, Brisbane since 2003. Current primary research interests are in Behavioural & Molecular phenotypes, Autism as well as sleep difficulties in children with developmental difficulty and has a number of publications in these areas. She has presented at National and International meetings. She is an Executive committee member of the Society for the Study of Behavioural Phenotypes and is a Paediatric member on the Behavioural Sleep Medicine Disorders Group for the Australasian Sleep Association.

John O’Connor (B Ec) John is a consultant with Australian listed companies in the investor relations area and has a long career in investment management.

Christine Kelleher, NSW

Christine is the mother of 2 adult children with Fragile X. Christine answers the parent support line 0409 987 012

 

Mel Mikkleson, QLD

Mel has 2 children, the youngest with Fragile X.

 

Brenton Phillips, SA

Brenton has 2 sons, the youngest with Fragile X.

 

Sarah Jones, VIC

Sarah has 2 young children, the youngest with Fragile X.

 

Azma Hoskins, WA

Azma is the mother of 3 young children the 2 oldest with Fragile X.

 

Sue Bride, Web Designer

Sue designed and manages the FXAA website.  Sue has 3 adult children, the youngest with Fragile X.

Liz Howarth, ACT

Information coming