On looking up our webpage Brenton Phillips was disappointed to see that there was no Parent Support Group in South Australia so he decided it was time to start one up!

Brenton would love to get in touch with other families in South Australia who are affected by Fragile X. He is keen to organise family days and give representation to other families with Fragile X children and Fragile X adults in South Australia. Anticipated activities include family days, workshops and parent support.

Brenton

Brenton is the father of 2 boys, the youngest, Matthew, has Fragile X Syndrome.

Matthew wasn’t diagnosed until he was 41/2 and therefore missed out on early intervention which made life difficult as his speech and communication skills were delayed. Matt is in year 5 and loves his cricket and footy. He is a very stylish left handed batsman and when he first started playing in C Grade with mainstream kids, the others thought he wouldn’t be any good, they soon found this out to be wrong when Matty smashed them all over the ground!

Matthew is very close to his older brother and has a wicked sense of humour as you can see from some of the photos here.

If you wish to contact Brenton regarding the South Australia Support Group please visit our South Australia Page for details