The newest video on Katie Clapp’s FRAXA YouTube Channel is "First Down Towards a Cure for Fragile X". Families and professionals talk about their experiences of working with and caring for children with Fragile X syndrome and their hopes that research will find a cure within their lifetime.

You can find a list of videos relating to Fragile X on our video page. These are videos that have been added to the Fragile X YouTube Group. Membership of the group is open to all and new videos can be submitted by members.

Katie Clapp, M.S., is President and Executive Director of FRAXA Research Foundation and a a parent of two children who have Fragile X. Katie, along with her husband, Michael Tranfaglia, MD, and another mother of an affected child, Kathy May started up the Foundation in 1994.

FRAXA’s mission is to accelerate progress toward effective treatments and a cure for Fragile X, by funding the most promising research. FRAXA has, to date, funded $15 million in research.