Fragile X Awareness Day
Fragile X Awareness Day
22nd July 2009
Fragile X Awareness Day on July 22nd is to promote the awareness of Fragile X syndrome. The incidence of Fragile X can be significantly reduced through awareness and early intervention assists in providing support and strategies to
help improve the quality of life of a Fragile X child. In Australia, it is estimated that one child every week is born with Fragile X and twelve are born carriers.
Please support the Fragile X Association of Australia through Fragile X Awareness Day by holding morning teas, having sausage sizzles or just talking about Fragile X syndrome to your family, friends and colleagues. Fragile X Awareness events can be held throughout July.
Last year we had families hold mini seminars and hosting awareness morning teas at their workplaces. If you are holding an event please contact the Fragile X Association on 1300 FX INFO (1300 394 636) for information on fundraising.
If you are a school or organisation, please download our schools package Schools Kit - Nov 2010
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I hope the awareness day was a success. I must admit I had not heard of the condition until recently so I think anything that can be done to raise it’s profile and aid diagnosis must be a good thing.