On 14 September 2009, the Parliamentary Secretary for Disabilities and Children’s Services, the Hon Bill Shorten MP, and the Minister for Employment Participation, Senator the Hon Mark Arbib, jointly released the National Mental Health and Disability Employment Strategy, a part of the government’s Social Inclusion Agenda. The Social Inclusion Agenda aims to address the barriers [...]

As well as keeping up with National Fragile X Foundation announcements and news on their website you can now follow their news via the new NFXF Twitter page FragileXnews If you would rather read the Twitter updates via a newsreader you can do so via the FragileX news feed. Website news feeds can also be [...]

Highlights From November 6th to November 14th the Fragile X Association is having a series of Fragile X seminars and family forums with Professor Randi Hagerman and Louise Gane from the M.I.N.D. (Medical Investigation of Neurodevelopmental Disorders) Institute in UC Davis in America. Seminar Registration Form Fragile X Christmas Cards 2009 on sale Profile – [...]

Monday 19th October marks the start of Carers Week 2009. Carers Day 2009 is on Tuesday 20th October. Carers Week is aimed at celebrating and acknowledging the vital role carers play in our society whilst giving carers an opportunity to get together to share support and information.. Carers Australia CEO, Joan Hughes, recently launched a [...]

The National Fragile X Foundation has been producing audio webcasts covering various aspects of Fragile X. They are available to listen to from their website on the Prior Audio Webcasts page Topics to date:: “Thriving Not Just Surviving: Family Self-Care” with Diane Simon Smith, M.P.H., MA, M.F.T. ,  Carolyn Krull Toennessen, Aerospace Industry Project Manager [...]