US Congressman Phil Hare (D-IL), Congressman Gregg Harper (R-MS), and Holly Roos of Canton, IL created the following Public Service Announcement to recognize Fragile X Awareness Day. You can view this and many other Fragile X Videos on the YouTube Fragile X Group

Reasons that Raising Awareness of Fragile X Syndrome is Important? It is estimated that one child is born in Australia every week with Fragile X Syndrome and in that same week, 12 babies will be born who are carriers. One in 3800 males and 1 in 4000 females are affected by the condition. Although Fragile [...]

We are pleased to announce the release of our new brochure, Fragile What?. You can download the brochure from our site. The brochure gives an overview of the topics: What is Fragile X Syndrome? What Causes Fragile X Syndrome How is Fragile X Syndrome Inherited Why Should I be Tested? Treatment Autism and Fragile X [...]

The National Fragile X Survey will continue until September 2009 and is the first national study of families in Australia and New Zealand who have a child/children with Fragile X. Dr. Don Bailey, an expert in Fragile X research at R.T.I (Research Triangle Institute) International , is directing the study. The confidential results from the survey [...]

  After the success of last year’s fundraising, the NSW team are again organising a Fragile X City to Surf team this year. Last year we were in the top 10 fundraisers and raised over $8000. This was a great achievement,so lets see what we can do in 2009! Getting involved in this event on August 9th would be a [...]