Fragile X Awareness Day 22nd July 2009 Fragile X Awareness Day on July 22nd is to promote the awareness of Fragile X syndrome. The incidence of Fragile X can be significantly reduced through awareness and early intervention assists in providing support and strategies to help improve the quality of life of a Fragile X child. [...]

Significantly improving the lives of carers is the intent of a new Australian Government report which includes 50 recommendations for providing better support to carers..The report, entitled Who Cares …?, was launched on 1st May, 2009 by The Family, Community, Housing and Youth Committee. The committees terms of reference were to obtain an improved understanding [...]

On looking up our webpage Brenton Phillips was disappointed to see that there was no Parent Support Group in South Australia so he decided it was time to start one up! Brenton would love to get in touch with other families in South Australia who are affected by Fragile X. He is keen to organise [...]

The NSW Department of Ageing, Disability and Home Care (DADHC) has released a discussion paper titled “New Directions for respite services in NSW”. which broadly outlines the direction DADHC intends to take to reform and expand respite services in the state. DADHC invites comment and feedback from people with a disability, their carers and families, [...]