From July 1st 2008 the “Fragile X Association of Australia” became a truly national organisation. We have a new logo as displayed in our heading above and as from today this new website.

Because of the nature of the site we can bring you up to date information on Fragile X as well as disability resources and events within Australia. Our forums will allow members to talk about Fragile X, offer each other support, their experience and experiences and get to know each other. The forums are being looked after by Janine and Sue who have now closed the forums they ran at Fragile X Online.

The Association now incorporates the parent support organisations in New South Wales, Western Australia, Victoria and Queensland. Whilst being part of the Association these organisations also continue to operate in each state to ensure that members receive state based information and local support. It is to be hoped that in the future South Australia, Tasmania and the Territories will also be represented. All administration is now run through the Sydney office.

There is an urgent need to improve public awareness, professional, medical, therapeutic and educational expertise and government support for all those with Fragile X and their families. It is our sincere hope that one national association with one strong voice will enable us to be collectively far more effective than we have in the past so that the quality of life for people with Fragile X, their families and carers can be improved.

There are now 10 Committee members and we have provided a brief description of their backgrounds on the Committee Profiles page. You will see that the Committee has a vast range of experience and expertise from which we can draw.

We have already posted our newletters from 2006 to June 2008 and our new newsletter will be online very soon.

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