The Word

This wonderful poem was written a few years ago by a member of our forums, who kindly allowed me to post it here. I can relate to the world that the Internet opened up for me with regard to Fragile X – a world of information, knowledge and support. This is continuing with the forums here with the help of its members and their contributions. I would like to thank you and wish you and all our regular news readers a very happy Christmas season

THE WORD

I felt so overwhelmed the day
I hooked up to the "net"
So much to learn, so much to see
A virtual global knowledge tree

But then one day while surfing
I typed a special word
It’s one that means so much to me
But most have never heard

And when the globe stopped turning
I stared at all the text
Someone out there somewhere
Had heard of Fragile-x!

While there before my very eyes
A listserv did appear
Where I could use this special word
Where someone there would know my fears

For now that global knowledge tree
Lies buried in the wire
I’m much to busy with my list
Where we can post and share

Although we may be different
We want our message heard
To say my child has Fragile-x
And have them recognize the word

Dot – grandmother to a young man with Fragile X Syndrome.


By | December 25th, 2008 | Category: Fragile X | No Comments »