Archive for December 2008

New method of scoring IQ tests for children with Fragile X Syndrome

Children with Fragile X vary greatly in their abilities and degree of difficulties. Normal IQ testing is often inaccurate because these tests are based on the performance of children without disabilities. David Hessl, from the UC Davis M.I.N.D. Institute, and a team of researchers have devised a new method of testing. David, who works with [...]



The Word

This wonderful poem was written a few years ago by a member of our forums, who kindly allowed me to post it here. I can relate to the world that the Internet opened up for me with regard to Fragile X – a world of information, knowledge and support. This is continuing with the forums [...]



Wynnum Carols By The Bay

For a review of this event please see:  Review of Qld Christmas Fundraising Christmas carols, carnival rides, entertainment, food and fireworks are all happening this Saturday at Wynnhum Carols by the Bay, Brisbane, supporting the Fragile X Association Australia. Festivities start at 3pm with a mini fair, music, dance performances and multicultural refreshments. Activities include [...]



NSW Family Day Review

  Making the Pizzas We had a great roll-up for the pizza/fishing day (quasi Christmas function) with two current family members attending for the first time.  Unfortunately, the weather was not the best, windy and rainy and clearing in time for our departure!   Tim had fired up the pizza oven well in advance and Robyn [...]



Disability Website News

Autism Help Info The Autism Help Info site has been created to provide user friendly, practical and readily accessible information on Autism Spectrum Disorders for all, including persons with ASD. It aims to increase awareness of ASD and provide practical strategies and resources for all those who teach, care for or provide therapy to children [...]



fx info Newsletter Summer 08

Highlights Article by Danuta Loesch MD PHD, Senior Research Fellow at the School of Psychological Science, La Trobe University, Melbourne, on her current and past research into Fragile X: “Studies of Genotype-phenotype Relationships in Fragile X: Current research and a Historical Perspective” Article by Christine Kelleher our NSW Parent Support Co-ordinator on “What to do [...]



Becoming a Disability Confident Business

An Australian website has just been launched to provide businesses with "information, tips and advice on becoming a disability confident business for both employees and customers". The site, disability confidence, compliments a new publication "Opportunity – the business case for including people with disability as customers and employees". Both site and publication were developed by [...]



Brisbane Fragile X Workshop Update

On Friday 31st October, the Fragile X Association of Australia, held our first mobile workshop, with the support of QCIDD, at the Mater Hospital in Brisbane. The seminar was held in Brisbane as we were fortunate to have Dr Jonathan Cohen and Rashelle Cohen, Behavourial Optometrist, staying there that weekend. We took the opportunity to [...]